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Wow, is all I can say at this point

SteelRose's picture

So our kids started back to school here yesterday. Dh drove ss16 to his old school and then worked all day and then came home with ss just before I had to leave to go to work for the evening. I drove bs15 to his bus stop down the road yesterday but he walked up from the bus stop and came in and had brownies I had made and was already home an hour before dh and ss got home. So I came home later (I work for 3 hours from 4-7pm daily to help a client eat supper and got to bed) at 7 and made dinner and we all went to bed. Bs15 was in bed by 8:30! This morning we all woke early to get the boys off and dh and I were sipping coffee and then dh and ss left to drive him to school and bs15 walked out to his bus stop and I am still sitting here enjoying coffee before work. All of a sudden about 20 minutes ago dh comes in and says he is so sick and tired and cannot do anything for his son and was crying and I was asking what is wrong and he says his car broke down on the way in to take ss to school anad he is letting ss down b/c it's a break down where it's going to take a lot of money to fix, money we don't have. So he was asking for my car keys and he is taking ss to the local high school to enroll him this morning. Wow, it was just one day of dh driving ss to school and everything took care of itself. I feel badly for dh but in all reality, since he's had cancer he has not been the same and until we get his PET Scan done next month I don't believe we got all the cancer with chemo. He is still so sick and weak and he has spells of confusion and panic. This is why I wanted ss in the local school to begin with b/c I did not think DH was ready for work yet.

So I am currently working on filling out yet more papers for SSI. They keep asking for the same info and it gets old BUT we need that income. I cannot continue supporting this household. DH knows this and feels so badly and wishes he could support his son and me his wife but he can't, he is simply to sick and weak. This cancer has and still is taking it's toll on him and I hate seeing it but what can I do?

Anyhow, that was a long ramble - sorry but I had to just talk. lol

Comments

SteelRose's picture

Yes we have a lawyer helping us. It's been about 9 months since we first filed. The whole of the time DH has been fighting cancer; the whole time he has not been able to work, I have had to work two jobs to keep us in a home, I would loved to have had SSI DURING the chemo treatments so I could have taken care of DH a bit more. The system stinks.

SteelRose's picture

Well we are applying for retro SSI for all the way back to DH's motorcycle accident in 2008; he has not been able to hold down a normal full time job since. So if that is the case, we will have nice breathing room! I'm trying so hard to hold on and keep working hard and keep us above the crappy waves of bills and more bills!

SteelRose's picture

Did your case get okayed at the second appeal? I just talked to our attorney and she said if it gets denied the second time then it goes to a hearing before a judge and that could take up to 18 months to schedule b/c of the back logs. Sad