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Is it real or is it Lupus

CLove's picture

The latest from SD23 Feral Forger. According to a text from Toxic Troll, shes being tested for various things, ranging from Lupus to Fybromyalgia. I suggested, lightly, that he "might" want to reach out, but he prefers to let the dust settle. He doesnt know where shes living since Toxic Troll moved. SD16 PMP sais one thing, his co-worker who hears things sais another.

At least while living with Toxic Troll we felt safe from her. With no expectations given. 

Toxic Troll and SD23 FF both love going to DRs, and love having illnesses that are incurable, to gain sympathy and get out of working. Husband tells me this and I believe him. 

He also tells me that fybromyalgia can be confused with Lupus.

Im researching both, but just dont know anything really, just that Lupus is an autoimune disease that is uncurable, but manageable. Fibromyalgia is: "a disorder characterized by widespread musculoskeletal pain accompanied by fatigue, sleep, memory and mood issues. Researchers believe that fibromyalgia amplifies painful sensations by affecting the way your brain processes pain signals."

But dont really know how they can get a diagnosis that is iron-clad. It seems like one shows up in blood tests, and one shows up possibly in other tests.

Just dont really want to be involved at all. Zero sympathy.

Comments

advice.only2's picture

Not your worry and if DH has nothing to do with SD23 and doesn’t want to reach out that’s his choice. As for Lupus and Fibromyalgia, a lot of times they go hand in hand.  I had a friend with Lupus who was then diagnosed with Fibromyalgia.  She smokes and drinks and abuses prescription drugs so she is not doing well.  She has lost all of her hair and it appears in photos that her liver is enlarged.    People with lupus can live full lives but they have to be careful and take very good care of themselves, I highly doubt your SD23 will do that. 

CLove's picture

and takes meds for whatever. She is a piggy that doesnt take care of her garbage much less her health. Thanks for the info. 

Yes, I suggest only now, I dont push anything...

strugglingSM's picture

I'm not an expert, but I think lupus is something that can only be diagnosed in the absence of other conclusive tests. I'm not sure there is a conclusive diagnosis for lupus. I think it can be debilitating and often lead to unclear symptoms. 

I, too, have a BM (and an SS) who often claim to have illnesses they do not have. BM recently emailed DH to tell him how hard her life was because she thought she had cancer, but actually doesn't. SS told DH months ago that BM had cancer. SS has also claimed to have asthma, anxiety, and possibly cancer (he did not have cancer). SS has also regularly claimed to have "broken bones", only to be fine the next day. He once fell at a water park and was sure he had a broken rib...I think what he really had was the embarassment of falling in front of others. DH ignores all BM's emails about her supposed illnesses. He did reply about her sister's cancer...she sent a total of seven messages over the course of a couple of months about how her sister had "the worst kind" of breast cancer. She ultimately told DH she may need to have him take extra weekends to "help" her sister's family. DH's only reply, "Sorry to hear about your sister. I will accommodate extra weekends when I can." 

I view BM's messages about her health to be fishing for DH to still "care" about her. He doesn't...years of abuse and parental alienation will do that to a person. 

CLove's picture

Toxic Troll had a stomach cancer, and then she had her head injury and now, who knows, but it is never ending. Same with Feral Forger. Shes been in and out of the hospital like shes a permanent resident.

Im sure thats exausting.

ESMOD's picture

Lupus is a real thing.. and it can be diagnosed and treated.. but people who suffer can have a range of symptoms and impacts.. it can attack organs.. including the skin.. I had a horse trainer friend who had lupus.. and she had to take meds and had issues with the sun and had good spells.. and not so good spells.

I remember when Fibromyalgia came out years ago.. my Ex mil swore she had it.. aches in her arms.. etc.. she chased diagnosis with Drs.. went to holistic healer types.. also.. got a lot of pills from them that turned out to be basically amphetamine like impact..

You know what she had? heart disease.. and she died of THAT .. the pain?  yeah.. the heart attack pains.. but she was convinced she had fibro so got her doctors going down that road.. and they didn't pay much attention to her heart issues.. (and women often have their heart diagnosis overlooked).

Fibro was also often thought of as almost a "in your head" kind of thing too.. or something people would claim to get sympathy.. get out of doing things.. 

IDK.. I think there is more general consensus there is more to it than that.. but I didn't know if there was any test for it now.

CLove's picture

Eventually there will be SOME kind of diagnosis. That in your head thing, though, thats what stumps me.

Rags's picture

My brother came up with the above when his MIL was all trying to get away from her DH of decades without divorcing him. She moved to NM to help with her Fig-my-imagia.  Her DH was still working and followed her as soon as he retired.

Once she figured out that she was not going to be able to keep his money and have nothing to do with him... suddely no more Fig-My-Imagia.  Even after they moved back to their originall home from NM, no more Fig-my-imagia.

I know that there are people with legitimate Fibromyalgia who suffer significantly from the condition.

My money is on FF having Fig-my-imagia.

NotYourAverageStepMama's picture

along with other auto immune diseases/disorders. I had extreme joint pain, these random bumps on my joints of my fingers, elbows, etc. Had two of the bumps biopsied and was seen by a dermatologist and then a rheumatologist because they were pretty stumped about this sudden on set of symptoms. Turns out I had somehow during the holiday season of being out and about gotten sick with parvovirus which I had no idea humans could get apparently children get it and it is called fifth disease and for me resulted in viral arthritis.

I don't know anything about Fibromyalgia, but I do know that for Lupus there is a blood test they can do. The test I had was a CTD Test which looks at 10 different markers and based off the results of the 10 markers plus symptoms they can make an informed diagnosis about it. So for example on my test I was below the reference range (negative) on all 10 markers so it is a low likelihood of SLE.

From what I have learned when they thought I had it, it is more likely for a person to develop lupus if other autoimmune diseases/disorders are party of a family's medical history.

CLove's picture

Ive read that genetics play a large part. Parvo!!! Geeze.

But glad you got a proper diagnosis.

We will find out, from Toxic Troll...egads. Im staying as far away as possible.

NotYourAverageStepMama's picture

if it is not in your genes, then you won't get lupus, but it is way more likely if it is in your genes to have lupus. I was so happy when that test came back negative! 

Yeah, it was I think 2 months of not knowing and finally this amazing rheumatologist thought to test me for Parvo and that was what it was. I didn't even think people could get parvo! 

Sounds like the best idea for you to just stay away!

Rags's picture

When one would rupture it caused extreme swelling and pain in my hands.

My GP would just pretty much ignore it. As did I since it would come and go.

I have not had it in many years. I wonder if it was viral thing.

I have an auto immude disease as well. While we lived in Qatar I had a German rheumatologist who did a bunch of genetic testing on me.  We ran ot of insurance coverage on his testing and were going to continue in Jan of the following year but... we moved before we restarted the testing.  He found a primary Allele that is tied to autoimmune disorders.  His face when I told him that we knew I had that before he ran one test since I have been a T-1 diabetic since I was a kid was classic.  He did chuckle a bit when I dropped that on him.

NotYourAverageStepMama's picture

on all of the joints of my fingers and then on both of my elbows. So I went to my primary care doctor first who sent me to the dermatologist. They thought it was lupus or RA, tested me for both and some other things along with doing a biopsy on two of them. Since all of that came back negative they sent me to the rheumatologist who sent me for more testing and his hunch was right I somehow got parvo which resulted in viral arthritis. I sometimes have joint pain still all over my body from it, but otherwise that is the only lasting effect I know of so far. 

I got retested last year for RA to make sure and I don't have it. I have had very low B12 over the last couple of years though that might be from the parvo, but they aren't certain. I have to take B12 the liquid supplement everyday or I have issues within a couple days. 

NotYourAverageStepMama's picture

I am glad however that it wasn't lupus or RA, could be much worse!

notarelative's picture

. I suggested, lightly, that he "might" want to reach out, but he prefers to let the dust settle. He doesnt know where shes living since Toxic Troll moved. 

I think he is right. If he reaches out she may take it as a sign that she should ask for money or ask to move back in. 

I do realize that these are legitimate illnesses. But, I will admit that I am leery of some reasons for wanting testing. From what I recall of Toxic Troll's history, SD23's work history, and their habit of Dr visits, I would be wondering if this was an attemp to become eligible of SSI.

OSD here had an unknown living situation. I wanted DH to reach out too. His reaction was similar to your DH's. As the situation evolved, I realized he was absolutely right.

CLove's picture

I doubt that she would qualify given her spotty work history.

Plus shes not with Toxic Troll and shes not cognisant of all that, I dont think. She doesnt know how to effectively work the system in a legal sense, just knows how to steal and forge checks.

JRI's picture

I know there are many people who legitimately have lupus but why is it often the flaky ones who develop this.  BM, after years of abusing prescription drugs, and after years of unknown symptoms, got lupus.  I didn't hear the details, just "I had to xyz for Mom, whine whine whine" from SD61 for ages.  Any day now, I expect SD61 to develop it, a perfect disease:  vague symptoms, imdefinite diagnostic tests.

Ispofacto's picture

Lupus, fibro, migraines, backaches, seem to be the goto for grifters.

I actually know a reasonable person who has fibro, and she works for a living.

She is a former friend of Satan's, so Satan borrowed her diagnosis.  She's borrowed many, many other diagnosises from other people over the years, she doctor shops and fakes illnesses for profit and sympathy.  

If the person claiming the illness is a known grifter, the claim should be highly suspect.

Found this: https://pubmed.ncbi.nlm.nih.gov/10728452/

 

Exjuliemccoy's picture

I have an in-law with lupus; I also have in-laws who, for various reasons, have had mythical illnesses designed either to garner sympathy and attention, excuse them from the rigors of adulting, or both.

OSD complained of headaches and body aches, chasing a fybro diagnosis. While she didnt get one, she still leveraged it to avoid having to work much. When her H lost his job and she had to work, she would inevitably not get along with someone and soon have a "flare up" that prevented her from working. 

YSD is a pathological liar. At twenty, she first claimed to have breast cancer, then lupus. The relative who actually does have lupus found this interesting. YSD clearly had done some reading up on it, and even claimed to be seeing a rheumatologist. "Really, who?" YSD gave the name of an actual doctor, and it happened to be the same one treating relative. Oops, YSD. The relative was able to ask the receptionist if YSD was a patient there, and surprise! she wasn't. Its stuff like this that makes YSD such a scary person to be around. She constructs her lies, even doing homework to seem more credible. 

Rags's picture

 to lie and sustain that lie than to just not lie.  Rather  than lie, just be quiet.  Funny how that works. Doing that much work and research to perpetrate and sustain the lie, is pathetic.

The same applies for making an A grade in school.  It takes far more work to fail a class than to pass it, or even to make an A. The effort to avoid the consequences is far less than the effort to do the work. 

 

Harry's picture

Some people just loves drama.   You have a whold  Family who loves DRAMA. This is not going to change.  
Part of disengaging is not to play into this. Not to play into T.T. Games. She has F.F. Playing   Being sick is better then working.  Just wants money from DH. To fund her life 

Rags's picture

no drama, they fabricate it.

It is always something.  Idiot bosses who don't know as much as they do, teachers, school Pricipals, FFA Sponsors, etc, etc, etc...

My FIL once told me that I did not understand agriculture when DW and I were reviewing his business data for the hay farm that he was losing his ass on. That eventually cost him both of his farms, his house, and nearly put he and my MIL in the gutter.

I agreed that I did not have Ag business experience but that I have an MBA, have managed $Billion businesses, and was absolutely positive that the goal of any for profit business is to make money and not cost the owners everything.  When we were working his business recovery plan I called several coworker friends who have successful ranches of various sizes that included growing hay for their own livestock and for sale.  The only thing I know about growing grass is how to call TrueGreen and the lawn service. But... I know business and I network actively and know people who know people who know.  My FIL would not listen to me, nor to his MBA/CPA daughter.  His business failed, htey lost everything.  Then the blame the former owner of the farm for the failure started.

When the consequences of their decisions bites the in the butt, they spend countless amounts of energy trying to convince themselves and anyone who will listen that the bank is evil, their boss is out to get them, the teachers hate their kids, the Principal does not like the extended family, the FFA Sponsor is stupid, pick an evil hater to blame..... etc.....

I just don't listen. My DW tries to not listen but it all breaks her heart every time the cycle starts. Because it breaks her heart, they make me angry. They do not like me when I am angry.  I just tell them like it is.  Then they all get really quiet and stay that way for a while. Sometimes it is a fairly long while.  But then.... out comes the drama fest.

My GM (Dad's Mom) used to say "If you can't listen and learn, you will have to feel."  My IL clan spends a ton of time feeling since they refuse to listen and learn.

Dash 1