How involved is your DH with their child during the day?
I’ve been trying to talk to my DH about him doing more with his daughter during the day which would involve him having to leave work. Currently I'm the one having to do everything for my SD while he's at work.
I work part-time at a dental office and also have 3.5 year old daughter with my DH, so I have more time during the day. But I’m tired of being dumped on and I wish he would do more. He likes to ignore all the issues with his daughter and never deals with her therapist. I think he wants to essentially keep his head in the sand and ignore the reality of her problems.
His daughter is 15 and struggles with just a long alphabet soup of problems: GAD, depression, ADHD, ODD (Opposition Defiance Disorder), and SPD (Sensory Processing Disorder). She is also developmentally delayed and is in a special education program at an alternative school since she has problems functioning in mainstream classes. Twice this year she’s had psychiatric hospitalizations.
Her mom been in and out of jail the last 4 years and currently is at a halfway house in another state and not involved. My DH’s family is all out of state as well, so there aren't grandparents or other extended family on his side that could help out. It’s all on me.
Latest issue is twice in the last two weeks I’ve had to leave work to go pick up my SD from school in the middle of the day because of problems. 1st she felt sick (headache) and the 2nd time she had a meltdown following being written up for yet another dress code violation. (This is related to the sensory issues. She’s very particular about clothes – they have to be soft, seam and tag-free, loose fitting and even stuff she’s worn without problems she says is itchy. She only wants to wear certain sweatpants and sweatpants are against the rules at the school she’s at current. She used to wear them at her old school. She can’t accept that she can’t wear them at the current school. Sometimes she isn’t written up, other times she is and when I’m running late I don’t fight with her over her clothes.)
My DH does help out and he does work very long hours. Typically he gets up at 6am. He does help around the house with cleaning, laundry, dishes, and all the yard work. He gets his daughter up (always a huge fight trying to get her out of bed). He tries to sort out what she’s going to wear and making sure it meets the dress code but he’s out the door by 6:45, and she doesn’t leave for school until 7:20.
Usually DH doesn’t get home until at least 6:30pm and sometimes as late as 7:30pm. He helps put the 3.5 year old to bed, reads her a story, then deals with whatever problems SD has caused, tries to get SD to do homework and then the battle over getting to go to sleep (insomnia is one of her other issues).
DH does try to discipline his daughter, but she doesn’t listen to him and is incredibly disrespect towards him, me and everyone else. Her teachers have had it with her and they are trained to deal with special needs kids.
Here’s what I do for SD:
- Take SD to school and pick her up. That includes when she has to be picked up early for some problem. I also have had to take medication to her daily since there’s been problems with having to give medication at school.
- Take SD to appointments. She currently has 2 therapist appointments and 1 psychiatrist appointment a month. All of the offices only have appointments during regular business hours M-F when my DH is at work.
-Pick up SD’s medication from the pharmacy and try to get her to take it (which can be a challenge). DH can’t keep all of the medication straight or when she gets what. That's all me.
- Talk to teachers, counselors, principal at SD’s school about problems. I’m the one that gets called about behavior issues or other problems because DH can’t always take calls at work. Both of us are copied on emails.
- SD's therapist wants her getting more physical activity and has recommended yoga classes. I used to take her to yoga classes, but then she refused to go and it stopped. She should be doing more activities like that and occupational therapy, but it's expensive and I don't have the time to deal with it.
- I cook most meals, even though SD constantly complains and is a very picky eater.
SD tells me every day how much she hates me, so it’s not like I get anything out of doing all of this for her. It’s for my DH and I’m not sure he even appreciates it. It’s what needs to be done so I do it.
DH says if he has to constantly leave work, he’ll get fired and then we’re screwed because he’ll lose his health insurance. He doesn’t want to try to find a job with more flexible hours because he won’t know if the insurance plan has the same coverage and if her psychiatrist will be in the network. He can use sick time for kincare at his current job, but he doesn't get that much sick time and has used that for major issues like SD's hospitalizations.
I don’t think he wants to explain to his boss what’s going on to ask to be able to leave on a regular basis. He’s very embarrassed about SD and her behavior. It’s one thing to have a sick kid that he can explain to his boss about what's going on, it’s another to have the 15 year old who regularly has screaming tantrums bad enough she has to be sent home from school.
There are times I want to tell my husband that I'm not dealing with anything with his daughter any more, but then nothing will get done and then there's no chance her conditions will improve at all. I feel so utterly drained do this every day.
Is it realistic that DH should be able to leave his job multiple times a week during work hours to deal with appointments and to pick up his daughter from school? Or to set-up flexible hours so he can take her everywhere she needs to go?
First, I am so so sorry to
First, I am so so sorry to hear about the sheer pain you all are going through. Your SD is really ill and is suffering. You are at the end of your rope, and suffering.. I can hear it ...and with good reason.
To answer one question: Under FMLA your DH CAN leave work for SD's Dr appointments for a few hours here and there until he reaches a total of 12 weeks off within the calendar year (but it is unpaid.) Some states (like mine I live in Cali) have even greater/better leave policies for full-time employees. Some companies have robust leave policies for ill family members, including PTO. It depends on a number of factors, but is possible.
I have a friend with a developmentally disabled child who insisted the school provide testing and an independent learning plan for her child (really had to fight for it!) She did this because as soon as child was tested and an IDP was developed she knew county services became available which offered her child free supervised transport to Dr visits and even a paid babysitter so mom could get some time to catch her breath during the week. Have you exhausted all efforts in this regard?
I don't know how or why all of this got dumped on you. You are a saint for doing this for so long. It is time to pull back a bit now, hire it out, or you aren't going to make it. Even bio moms can't keep up that pace. Be extra kind to yourself and create a plan with DH you both can live with. Be selfish, be strong, tell DH that this isn't working and isn't a long term solution. Just because you work PT doesn't ean everything else gets dumped on you. You have your own child- she needs you too. You should be taking her to the park on your days off instead of carpooling SD to psych appts.
I'll research what services
I'll research what services are available. My DH doesn't want to talk to his boss about it. He works for a small company, so there isn't an HR department he can go talk to. I don't think he wants to tell his boss or co-workers about the stupid behavior issues causing all the problems. He works on construction sites, so he's not a guy working 9-5 behind a desk that can put off doing work until tomorrow.
He also wants to get his daughter back in a mainstream classes so she can graduate from high school and get a normal job and live a normal life, which I don't think is possible. He's putting a lot of pressure onto her to do well in school she's in so she can be moved back to her old school, rather than advocating with the school to get her treated like a special needs student.
Get SD tested. Districts
Get SD tested. Districts have funding for developmental disabilities but you have to advocate on her behalf for the services. By advocate, I mean be pushy. DH should really be the one doing this...it is HIS child. DH also sounds like he is in denial with how ill SD is. SD's behaviors you describe and the amount of care she requires does not describe mainstream, so that may be a fantasy.
THIS. It's unfortunate, but
THIS.
It's unfortunate, but companies with less than 50 employees are not subject to FMLA. That said, SD in this case clearly IS disabled and it's a shame DH doesn't feel he can ask about some accommodations. I'm part owner of a small business, and I would absolutely try to help out a good employee if possible. Maybe he can help with the daily meds or something he can plan on. I think it's sad that he's embarrassed by his daughter. Teenagers are difficult to begin with, but having all those other issues are a big deal.
I think OP is an amazing person for stepping up for SD here when nobody else can/will. This girl is lucky, even if she will never realize it. I have a 4 year old son with ADHD, and I'm calling out all the resources I can to try to help him, and it's hard. Having support of great teachers and behavior specialists has been life-saving for me. If we can't figure out how to teach him better behavior by the time he is a teenager, I can see a rough road ahead.
I would remove the clothes that don't meet dress code so she doesn't have the option. If the sensory issues are that bad, maybe try to discuss with the school and come to some sort of compromise. Try little things to try to make life a little easier; it may add up.
That all said, my DH isn't involved at all during the day with our kids, but they are ours, not just his. This is tough, because a mainstream classroom and normal job as an adult may never be possible with her. CHADD and other organizations have resources for parents of kids like these, and they discuss the type of jobs that may be more suitable for adults with these issues.
I'm going to offer a
I'm going to offer a suggestion.
Throw out/donate any clothes of hers that don't meet dress code. Stop fighting with the kid, remove the issue causing her tho have to leave school.
And clearly explain to her that she lost the priviledge of comfy clothes due tho her shitty behavior.
She isn't going to learn unless someone hands her a consequence she doesnt like but can't get out of.
She would just refused to get
She would just refused to get dressed and go to school. Or have a meltdown at school involving throwing herself on the ground, screaming and crying. She's 15 and her tantrums are worse than the 3.5 year old. I'm not sure it would really help the situation. She's close enough as is to being expelled from school.
Her closet is separated into school and play clothes, but that isn't working since she wears what she wants.
There are therapies to deal with tactile issues with Sensory Processing Disorder but it wasn't caught when she was little. I've seen videos on YouTube for massage and brushing parents can do with toddlers and preschoolers. When DH and I realized the sensory processing issues when she was 12, it seemed kind of weird for her dad to be touching his pre-teen daughter like that so he didn't do it and she's never seen a occupational therapist.
DH is helping you around the
DH is helping you around the house and with the other child, I do not think you can complain to much Hon...
but this is what I would do....
SD saying she hates me, simply smile and say yes I do but only when you act like a brat, ... and then walk away
sort the school out for not being consistent with the dress code, SD's therapist can give them a report about her censor issues and they can accommodate her clothing, maybe they can say, fine the sweat pants can stay but only color XXX or what ever, school are not totally wacked. But seriously I will look into a school that handles these children and understands them better - special school
I will have no problem driving SD to appointments after school, seeing I'm only working half day - but if she has a melt down during my office hours, I'm sorry her father will be doing the driving and he will be responsible to collect her, SD is playing and manipulating the system with this, let DH suffer and put a stop to it.
DH can pick up her meds from the pharmacy - if you keep on doing it he will never get it right, thus let him suffer for a couple off times and he will get it right,
Her old school was much more
Her old school was much more willing to work with us on the dress code and accommodations. Her current school is an alterative school for kids who have mainly have behavior issues so there's a much stricter dress code. Some of the staff there are livid about my stepdaughter being able to break the dress code since other kids cite her as a reason they can also wear sweats and yoga pants. I'm not sure if they'll care what her therapist says.
*Very long sigh*. The horrors
*Very long sigh*. The horrors of shopping with my stepdaughter. It's so difficult to find anything she likes. There are some clothing for autistic kids online, but it's mainly for boys. Sweats, pajamas and t-shirts are all ok for her and tag free.
Her school doesn't have a set uniform, but kids have to wear Docker style pants in certain colors, and finding ones without tags or seams that bother her, and that come out of the washer and don't feel "icky" or whatever. She's also battled issues with hives that make her just itchy and blames her clothes.
We found some Docker type pants at Kohls that were working, ordered more like them online, but those she refused to wear. The fabric was slightly different.
Would making some clothes for
Would making some clothes for her work ( or getting a seamstress or someone you know who sews to make some) work? Maybe your sd could even learn to make her own clothes that she likes and that fit the rules? Might be a long shot but might be worth it. Even if she just gets one or two outfits that can be washed daily and rework the next day.
I've tried to find sensory
I've tried to find sensory friendly pants on Etsy that will work (there are many) but all are sweatpants or leggings and mostly for much younger kids. Actually figuring out how to sew Docker style pants with the seams on the outside that would be approved by the school might be challenging, but I'm going to try to see if I can. Solving the morning battles would reduce the stress level.