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Is God testing my strength?

justmakingthebest's picture

DD12's migraines are getting worse and not better. She is on the 5th round of medication combinations. We still go to the ER every 4-5 days for rescue IV's. The nursing staff all knows us now. She had to HORRIBLE reaction to compazine yesterday. She has had it every other time and never had anything. She is still a mess this morning. The headache is back, she is puking, I have already missed 2 days of work with her and the specialist that could only see us in his office over an hour away and the ER yesterday. Insurance is fighting this round of RX's. I am just at a loss on how to help her. She is miserable and in so much pain all the time. The Neuro is referring her to a pain clinic.

 

DS13's therapist who has been treating him for anxiety and depression is worried that he may have Bi-polar depression. He is having more and more low dips. She has me watching for a manic episode. The reaction that I got from his father and SM made me want to jump on a plane and punch them both in the face. (And I get along with them very well!). Thankfully DH reminded me that we just adjusted his meds and to give it time and not to panic. I don't know how to help my son.

 

SS19 is driving me up a wall. I know he is special needs. I know he can't drive. I know he can't help 3/4 of the crap he does.  I am human and I am doing my best but with my husband out to sea so much right now I am afraid that I am going to go off on him.

 

BM2 finally emailed DH back about Christmas visitation after he sent the email I wrote and told him to freaking send. All she said was that the dates we proposed were 2 days too long in the break - His response was fine, we will adjust the dates and deal with the 5 weeks of make up time when we go back to court. 

 

SS15 texted his dad apparently around 1 am our time saying he wasn't coming because of basketball. DH's response: Love you kid, but you are coming out for Christmas. I haven't been able to spend Christmas day with you in 7 years. Basketball practice can be made up, our limited time together cannot. By the way, did you ever call and check on your grandmother yesterday after she got home from the hospital?

**MIL had a nasty fall and lost consciousness n Tuesday. She lost memory so they kept her overnight. 

Comments

thinkthrice's picture

Does she have food allergies?  Is it possible to take her off all starches and sugars to see if it helps?  Celiac disease can also cause bad migraines.

justmakingthebest's picture

No food allergies that we are aware of. She doesn't have any of the other symptoms for Celiac's, so I am doubtful on that... However once of the guidence counselors at her school told me that her daughter has issues with aged foods that they tracked to a trigger. So cheese, she can't have wine, etc. - Who knew?? 

fakemommy's picture

I started having chronic migraines around the same age. They were caused by puberty. Sometimes hormone-induced migraines can be prevented with birth control (sometimes it makes the worse). 

Felicity0224's picture

I am so sorry about your daughter. I had a good friend who experienced the same thing throughout the entire time we were in high school. Her parents spent every dime they had on traveling to different neurologists to figure it out. There was never a specific diagnosis and not a lot of treatment options offered. Then after we graduated and moved into our dorm at university, she never had one again. Whether it was environmental, or they were hormonal and she coincidentally grew out of them at the time of the move, no one ever knew. It was the craziest thing. 

On the IV thing - I'm not familiar with them, but I have noticed a lot of mobile IV services popping up in my city. Most of them are rehydration, hangover recovery, or sports recovery and a lot of people swear by them. Your daughter's pain may be way beyond whatever those IVs have in them, but it might be something worth exploring so she at least doesn't have to endure the ER so frequently.